From Normal Family to Diabetic Family–Our “New Normal”
Last I wrote, I was still in the hospital with my darling little girl and we were learning how to deal with juvenile diabetes. We were discharged a week ago and it things have gone pretty well. The Tater Tot doesn’t put up too much of a fight although she has started saying “No needle. No needle.” sometimes at dinner. And she doesn’t seem to want her insulin anywhere but her arm (for those of you who don’t know because I didn’t before this whole ordeal: injecting in the same place all the time builds up scar tissue which does not allow the insulin to absorb as well so you have to vary the injection site). So I have to convince…oh heck, let’s be real: I have to bribe her to take her injection somewhere else. She has only had one concerningly high reading but she’s been a little low more than I’m comfortable with. In terms of managing her diabetes, it has gone well. However, The Mommy hit an emotional wall yesterday. Actually, it was more of a crash than a hit. Hit implies less force. This thing just about knocked me flat.
I know that everything will be okay. I know that I am a good, attentive, nurturing Mommy who will do a good job raising her child. But my job just got harder. The sheer enormity of being directly responsible for whether or not she goes into a life-threatening low or high and the rigidity with which we must live our lives at least for now just got to be a bit much yesterday. We have been trying to keep things as normal as possible and The Tot has gone to all her regular classes and a few play dates even though we have been home only a week. But things are not normal. At least not the normal that we have known ’til now. It is not normal to have to stick a needle in your child’s appendages even when she doesn’t want you to. It is not normal to have to ask 4 or more times a day “Which finger?” and take action to get blood from that finger to make sure she is okay. It is not normal to see bruises on her tiny toddler arms where IV’s were stuck and veins were prodded to get blood for labs. Or to hear her say to convince herself every time you go to give her the shot “It doesn’t hurt.” Or to toss and turn and eventually give up and go test her again in the middle of the night because you’re not sure the snack you gave her before bed raised her blood sugar enough to not be dangerously low in the morning. And it’s just not normal for this sweet little angel to willingly hand over her finger every time I ask her to in order to get stuck yet again.
I am grateful that she is still enamored of her “new pink thingy” that tests her blood even though it means pricking her finger and that she, at least so far, is still cooperative. Because if/when she starts to resist more than the mild resistance we’ve seen so far, it is going to break my heart. And I know that I will do what I have to do even though she doesn’t want me to because those actions will save her life. I also know that this will get easier. And harder. All at the same time.

